Registry

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The EuRR-Bone (European Registries for Rare Bone and Mineral Conditions) project consists out of 3 specific registry items: 

1. e-REC (e-Reporting of Rare Conditions) is an electronic reporting system which captures activity and allows for a better understanding of the occurrence of the rare conditions covered within networks such as Endo-ERN and BOND. 
2. Core Registry, which collects a core data set for a wide range of rare bone and mineral conditions.
3. Condition Specific Modules, covering aspects of specific conditions such as diagnosis, therapy, monitoring, among others, are built into the Core Registry platform for dynamic and longitudinal collection of data.