Registry


The EuRR-Bone (European Registries for Rare Bone and Mineral Conditions) project consists out of 3 specific registry items: 

  1. e-REC (e-Reporting Of Rare Conditions) is an electronic reporting system which captures activity and allows for a better understanding of the occurrence of the rare conditions covered within networks such as Endo-ERN and BOND. 
  2. Core
  3. Disease Specific Modules