The EuRR-Bone project


‘EuRR-Bone’s aim is to create a high-quality, patient-centered registry for rare bone and mineral conditions’

The EuRR-Bone (European Registry for Rare Bone and Mineral Conditions) project is funded by the European Union’s Health Programme. EuRR-Bone’s aim is to create a high-quality, patient-centered registry for rare bone and mineral conditions in collaboration with the EuRRECa project (European Registries for Rare Endocrine Conditions).

EuRR-Bone will cover rare bone and mineral conditions the European Reference Network on Rare Endocrine Conditions (Endo-ERN) as well as the European Reference Network on Rare Bone Disorders (ERN BOND). EuRR-Bone will be of service to all patients, health care professionals and researchers involved in the care of people with rare bone and mineral conditions.