Data Access Committee

Data Access Committee of EuRR-Bone is shared with EuRRECa and resembles both registries.

ChairOlaf Hiort, University of Lübeck
Co-ChairAlberto Pereira, Leiden University Medical Centre
EuRR-Bone Natasha Appelman-Dijkstra, Leiden University Medical Centre
Project Manager EuRRECaJillian Bryce, University of Glasgow
Quality EvaluationLuca Persani, Istituto Auxologico Italiano Milan & Domenica Taruscio, Istituto Superiore di Sanità Rome
Core OutcomesOlaf Dekkers, Leiden University Medical Centre
Patient, Parent & EthicsMartine Cools, Ghent University & Arlene Smyth, Office for Rare Conditions, Glasgow
EuRRECaS. Faisal Ahmed, University of Glasgow
ESEJerome Bertherat, Université Paris Descartes, Paris
e-PAG ERN BONDTBD
ERN-BONDLuca Sangiorgi, Sostieni la ricerca dell’IRCCS Istituto Ortopedico Rizzoli
ESPEErica van den Akker, Erasmus Medical Centre, Rotterdam
ECTSTBD

To Co-opt from Project Governing Board Depending On The Theme

TBDSkeletal Dysplasia Expert Working Group
Thomas DanneDiabetes Expert Working Group, Children’s Hosp Auf Der Bult Hannover
Mehul DattaniPituitary Expert Working Group, Great Ormond Street Hospital London
Agnès LinglartCa & Phos Expert Working Group, Assistance Publique–Hopitaux de Paris
Irène NetchineGrowth Expert Working Group, Assistance Publique–Hopitaux de Paris
Anna NordenströmSex Development Expert Working Group Karolinska Univ Hosp Stockholm
Attila PatócsGenetic Tumours Expert Working Group Semmelweis University Budapest
Nicole ReischAdrenal Expert Working Group Ludwig-Maximilians-University Munich
Zdeněk ŠumnikDiabetes Expert Working Group, University Hospital Motol Prague
Edward VisserThyroid Expert Working Group, Erasmus Medical Centre Rotterdam