Data Access Committee of EuRR-Bone is shared with EuRRECa and resembles both registries. Our data access policy is alligned with that of EuRRECa .
Chair | Olaf Dekkers, Leiden University Medical Center |
EuRR-Bone PI | Natasha Appelman-Dijkstra, Leiden University Medical Center |
EuRRECa PI | S. Faisal Ahmed, University of Glasgow and Leiden University Medical Center |
Chair of the Steering Committee | Agnès Linglart, Assistance Publique–Hopitaux de Paris |
Project Manager | Tess de Rooij, Leiden University Medical Center |
Project Manager | Jillian Bryce, University of Glasgow |
Endo-ERN ePAG | Arlene Smyth, Office for Rare Conditions, Glasgow |
Endo-ERN representative | Pietro Maffei, Azienda Ospedaliera di Padova |
ERN BOND ePAG | Tenna Toft, Denmark |
EuRR-Bone representative | Gabriele Haeusler |
EuRR-Bone representative | Roland Chapurlat |
ESE | Kristi Alexandraki, National and Kapodistrian University of Athens |
ESPE | Olaf Hiort, University of Lübeck |
ECTS | Carola Zillikens, Erasmus Medical Centre, Rotterdam |