Data Access Committee

Data Access Committee of EuRR-Bone is shared with EuRRECa and resembles both registries. Our data access policy is alligned with that of EuRRECa .

ChairOlaf Dekkers, Leiden University Medical Center
EuRR-Bone PI Natasha Appelman-Dijkstra, Leiden University Medical Center
EuRRECa PIS. Faisal Ahmed, University of Glasgow and Leiden University Medical Center
Chair of the Steering CommitteeAgnès Linglart, Assistance Publique–Hopitaux de Paris
Project ManagerTess de Rooij, Leiden University Medical Center
Project ManagerJillian Bryce, University of Glasgow
Endo-ERN ePAGArlene Smyth, Office for Rare Conditions, Glasgow
Endo-ERN representativePietro Maffei, Azienda Ospedaliera di Padova
ERN BOND ePAGTenna Toft, Denmark
EuRR-Bone representativeGabriele Haeusler
EuRR-Bone representativeRoland Chapurlat
ESEKristi Alexandraki, National and Kapodistrian University of Athens
ESPEOlaf Hiort, University of Lübeck
ECTSCarola Zillikens, Erasmus Medical Centre, Rotterdam