Data Access Committee

Data Access Committee of EuRR-Bone is shared with EuRRECa and resembles both registries. Our data access policy is alligned with that of EuRRECa .

Chair	Olaf Dekkers, Leiden University Medical Center
EuRR-Bone PI	Natasha Appelman-Dijkstra, Leiden University Medical Center
EuRRECa PI	S. Faisal Ahmed, University of Glasgow and Leiden University Medical Center
Chair of the Steering Committee	Agnès Linglart, Assistance Publique–Hopitaux de Paris
Project Manager	Tess de Rooij, Leiden University Medical Center
Project Manager	Jillian Bryce, University of Glasgow
Endo-ERN ePAG	Arlene Smyth, Office for Rare Conditions, Glasgow
Endo-ERN representative	Pietro Maffei, Azienda Ospedaliera di Padova
ERN BOND ePAG	Tenna Toft, Denmark
EuRR-Bone representative	Gabriele Haeusler
EuRR-Bone representative	Roland Chapurlat
ESE	Kristi Alexandraki, National and Kapodistrian University of Athens
ESPE	Olaf Hiort, University of Lübeck
ECTS	Carola Zillikens, Erasmus Medical Centre, Rotterdam