COVID19

Since April 2020, the e-REC platform is also being used to capture the occurrence of a new COVID19 infection in a patient with an existing endocrine or bone condition. The platform remains open for any centre that would like to participate. 

The e-reporting tool (e-REC) is open to all centres across the world. It has been fully operational since July 2018 first for EuRRECa and since April 2020 for EuRR-Bone within a robust governance and ethical framework that does not require individual patient consent. Since April 2020, close collaboration with the ESE Rare Disease Committee, has also led to the extension of the platform for reporting COVID-19 infection in a patient with an existing endocrine or metabolic bone condition.

If you would like to use the e-REC platform to report a new COVID-19 infection in a patient with an existing condition, please visit the e-REC platform and create an account.

If you are already an active user of e-REC, then, after login, you will need to revise your ‘reporting set up’. 

If you need any assistance, please contact us. To encourage active participation we have arranged a series of drop-in sessions to demonstrate the e-REC platform and field any questions you may have.  Starting from 13/11/2020, these sessions are scheduled on every second Friday of the month at 2pm (CET) via ZOOM. Click here to join.  Ad hoc drop-in sessions at other times can be arranged upon request.  

For more information from ESE on their activities, resources and information on COVID-19, visit their dedicated webpage and the RD COVID-19 Task Force.

Instructions for reporting a new COVID-19 case in a patient with an existing endocrine or rare bone condition

The e-REC platform has been extended to capture new COVID-19 cases in all of the condition groups supported by EuRRECa and EuRR-Bone.

COVID-19 cases can be reported as suspected or confirmed. If a case is suspected, it is recommended that the return is saved as ‘In Progress’ (not submitted) and once confirmed, the return can be revised.

To add COVID-19 in your Reporting set-up, ensure there are no In Progress returns upon log-in and open ‘reporting set-up’. Click on all the condition groups in adults or in children that you want to report on.

COVID-19 cases should be reported in the month the infection arose.

Secondary Surveys

The e-REC platform also supports the development of secondary surveys for selected conditions including COVID-19 cases.