Achondroplasia Module

The disease specific module was launched February 2022 and is the work of the vertical theme Achondroplasia.

Want to start using the module? Get access to the Core registry here. After entering the patient in the Core Registry, the Achondroplasia module appears automatically and is ready to use.

If you have questions or interest in joining the working group, please contact us on

The full data dictionary can be downloaded here when available.

Tools used in the module :