EuRR-Bone is the first pan-European Registry for Rare Bone and Mineral Conditions (RBMCs). This is a complex group of diseases involving many specialists. EuRR-Bone aims to establish a registry throughout Europe for patients, care givers and healthcare professionals.
By collecting data we hope to contribute to improvement and harmonization of healthcare for individuals living with RBMCs across Europe. The focus of the registry includes over 150 rare diseases affecting bones, cartilage and dentin and more than 40 rare conditions affecting phosphate and calcium metabolism.