Attending ECRD?

Check our poster: presented by Ines Alves EuRR-Bone WP 5 chair and e-PAG of ERN BOND

EuRR-Bone @ICCBH 2022:

2nd ICCBH-ERN BOND Workshop on Spinal complications in Achondroplasia, full program here

P158
The European Registries for Rare Bone and Mineral Conditions (EuRR-Bone): Focusing on the Core
Registry and Disease Specific Modules
Presenter: Diana-Alexandra Ertl (Paris, France)

The European Registries for

Rare Bone and Mineral Conditions

What is EuRR-Bone?

Expert centers for rare bone and mineral conditions and patient representatives  have joined their forces and started the European Registries for Rare Bone and Mineral Conditions (EuRR-Bone) in April 2020. This project works closely with the European Registries for Rare Endocrine Conditions project (EURRECa) and the European Reference Networks for Rare Bone and Rare Endocrine conditions and includes:

1657288800

  days

  hours  minutes  seconds

until

Next registry drop in Zoom session

Go to our news page for more information or join here