The European Registries for
Rare Bone and Mineral Conditions
What is EuRR-Bone?
Expert centers for rare bone and mineral conditions and patient representatives have joined their forces and started the European Registries for Rare Bone and Mineral Conditions (EuRR-Bone) in April 2020. This project works closely with the European Registries for Rare Endocrine Conditions project (EuRRECa) and the European Reference Networks for Rare Bone and Rare Endocrine conditions. For this reason we have a new website, joint with EuRRECa, from April 2023 onwards: https://eurreb.eu. This website hosts all shared documents and information regarding the registries.
Drop-In sessions via ZOOM
Every second Friday (at 2pm CET) and the fourth Wednesday (at 4pm CET) in every month EuRRECa and EuRR-Bone organise a Drop-In session via Zoom.
During these Drop-In sessions you learn more about e-REC (e-Reporting of Rare Conditions) and the Core Registry.
No need to register for the session, just come along!